Donations

IDEA League

The average monthly cost of Stiripentol, a European anti-epileptic drug shown to improve seizures in patients with Dravet syndrome, is approximately $1,000 or more. For many families struggling in these difficult economic times, this life-saving medication is simply unobtainable. The IDEA League has set up a fund to help offset the high cost of Stiripentol for families who can not afford it. The IDEA League also places a high priority on research and will be awarding its first research grant to scientists in the spring of 2010.

Please click the link below to make a donation to the IDEA League. Your generous, tax-deductible donation will help fund research to improve treatment and find a cure Dravet Syndrome. You will also be helping the IDEA League offer support to families all over the world affected by Dravet Syndrome.

Donate to the IDEA League

4 Paws for Ability

Please help 4 Paws For Ability provide certified service dogs to children with refractory epilepsy and other disabilities. Click the link below to make a donation to 4 Paws. Please specify that your donation is in honor of Sarah Black.

Donate to 4 Paws for Ability

Helpful Links

www.coolsport.net - Cooling Vests

www.seizuretracker.com - Easy tool to track seizures

www.epilepsy.com - Great source of information

YouTube Emory Video - Video from Emory University on sodium channels & epilepsy

www.PurpleDay.org - Raise Epilepsy Awareness by wearing purple on March 26th.

www.SUDEPAware.org - information about SUDEP

www.CharlieFoundation.org - information about the ketogenic diet